With Noah's surgery coming up on thursday (and maybe the fact it's almost that time-of-month), I am holding my sweet boy so tightly and tearing up as I type this.
Just watching him full of joy and life, cruising around the house in nothing but a t-shirt and diaper (his usual uniform-- it would be just a diaper but he would pull out his g-tube!). Just breaks my heart that he will soon be in so much pain in his throat.
My biggest prayer: no swelling.
Please Lord, have mercy. No airway compromising swelling.
Please Lord.
Not that this surgery is even a big deal compared to the "big ones" that sit on our horizon. I know I need to just relax. And trust. But still, this is the first time we've touched even close to Noah's LM and I'm just worried and stressed. I'm 99% sure this is the right thing to do and the right time to do it... we are making more room not only for when he gets sick, but also in preparation for the big surgeries. I'm just asking for peace and confirmation from the Lord that we are making a good choice. Lymphatic malformations are unpredictable and scary!
"I will follow you in green pastures and sing Hallelujah to your name. I will follow you through dark disaster and sing Hallelujah through the pain. Even in the shadow of death I will praise you. Even in the valley I will say, 'Holy, my God, you are worthy of all my praise'"
(From Selah's "All my Praise", but pretty sure its somewhere in scripture!)
1 comment:
Prayers coming your way. Keep us posted on anything else specific to pray for. NO SWELLING!!!
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